Losing Touch, by Gillian

I will, before long, I expect; I’m rapidly losing other senses. My hearing is not too bad, but I don’t seem to smell the wet grass or the salty ocean with the strength I did as a child. Fresh strawberries and tomatoes right off the vine sure don’t taste as good as they once did, and my eyesight is battling the effects of glaucoma, so I have little reason to expect my sense of touch not to deteriorate. My mother had terribly inadequate blood circulation, leading to frequent complaints of not being able to feel her hands and feet, or feel with them. She would put me to work peeling potatoes, slicing bread, shelling peas or folding the linens, because, she said, she could not feel what her fingers might be up to. After she cut herself twice and then dropped our best kitchen knife on the stone kitchen floor where it broke, she was only allowed anywhere near a knife on really hot days – rare events in my pre-global-climate-change England. I don’t seem to have inherited that problem, but my Beautiful Betsy has exactly the same thing so before long I shall probably be called upon to perform all our household chores involving sharp utensils.

My dad lost touch. Sadly, it was not a problem with his fingers and toes but with his mind; his very being. Through dementia he lost touch with everyone and everything, including himself.

I first noticed some confusion on a visit home when he was in his early seventies – a little younger than I am now. I mentioned my concern to Mum but she shrugged it off with, well, Dear, I’m sure our minds aren’t quite as sharp as they once were. But she exhibited none of it, I noticed, and in fact she never did and was sharp as a tack till the day she died. I, of course, was living in Colorado and only saw them once a year or so, though out of necessity my visits became more frequent and of greater duration as they aged. The next time I returned, after this particular trip, I was aghast at my father’s mental deterioration. It was harrowing; heartbreaking.

He floated in and out, drifting from lesser to greater confusion and back again, all the time knowing he was losing touch. At one stage he held his wrist towards me, tapping at his watch – a much-valued possession. He gazed at it, then looked at me with tears and a look of such anguish in his eyes that I almost burst into tears myself, but of course I knew I must not.

‘I can’t remember,’ he faltered.

‘What is this? How do I make it work? What does it do?’

‘Oh .. um … nothing much …’

I ran my fingers gently over it. I had to put some cheer in my voice.

‘It sure is a beautiful thing, isn’t it? I tried, desperately.

‘It is,’ he agreed. And smiled.

Not many visits later I returned to see him safely settled into a memory care facility. By then it was easier on all of us. He no longer drifted in and out of differing cognitions. He had no idea who I was or who Mum was or who he was. He no longer struggled with what his watch was for.

He seemed remarkably at peace, so Mum and I were able to find peace for ourselves.

Right now, I am losing touch myself, though not, thank you God, in the way my dad did; at least not yet. Rather, I make a conscious effort to lose touch. I can only inhabit this current socio-political reality for a limited amount of time. I simply have to escape. If Agent Orange can inhabit a reality that is all of his own making, then surely, I can escape to my own alternate reality on occasion? I have a collection of home-made VCR tapes, mostly of ancient Brit sitcoms. Some of these shows are really pretty bad, but in my alternate reality the worse they are the better I enjoy them. So, most evenings I head for the basement TV, descending to my alternate reality as I say to Betsy. Though to be honest even bad Brit sitcoms reach a higher standard than this current American reality show in which we find ourselves, so in fact I am rising up to my alternate reality.

Margaret Atwood says –

‘You may not be able to alter reality, but you can alter your attitude towards it, and this, paradoxically, alters reality. Try it and see.’

Sorry, Margaret, I’m a fan of yours but I tried it and I didn’t like it. I reserve the right to lose touch.

© February 2018

About the Author

I was born and raised in England. After graduation from college there, I moved to the U.S. and, having discovered Colorado, never left. I have lived in the Denver-Boulder area since 1965, working for 30 years at IBM. I married, raised four stepchildren, then got divorced after finally, in my forties, accepting myself as a lesbian. I have been with my wonderful partner Betsy for thirty years. We have been married since 2013.

The Truth Is, by Pat Gourley

The truth is I am a very lazy writer when it comes to putting fingers to keyboard and coming up with something for our weekly SAGE topics. I genuinely feel that my story, at least from a historical perspective, has pretty much been shared with the group. The format we use though has been very stimulating for remembering many past events and antics from my past particularly it seems from the 1960’s and 1970’s.

The truth is though I have much less to write about particularly from the mid 1980’s to the present. I seem to have experienced a diminution of involvement even in activities that seem to land right in front of me and ask for active participation on my part.

The truth is I am not exactly sure why this has happened but I can speculate I suppose. Maybe it is just a matter of getting older. I am getting older like it or not. As I rapidly approach my 70th birthday the truth is … that seems quite amazing to me. I know I am speaking to many folks here quite a bit older and am perceived by some of you as just a youngster. However, I do appreciate how remarkable it is really for someone infected with HIV in the early 1980’s to still be around and often griping about what are really first world problems. An example of a very vexing first world problem for me would be my bemoaning the fact that my neighborhood Whole Foods Market closed last fall and moved to LoDo. I mean really how I suffer so having only a King Soopers, a Safeway, a Trader Joe’s and a Natural Grocers all within easy walking distance.

The truth is I have been infected with HIV for at least 33 years, having tested positive in the summer of 1985. I strongly suspect though I came in contact with the virus and it set up shop in early 1981 making it 37 years, more than half of my life on Earth.

What is my secret to this longevity you may ask? Well the truth is I have no fucking idea. Beyond just maybe being one lucky son-of-a–bitch I can quickly rule out a few reasons right off the bat. It was most certainly not any sort of strong religious faith or conviction. I am an atheist and a half-assed Buddhist practitioner on my best days. Diet and exercise have always been important to me at least on an intellectual and philosophical level if not in my daily eating habits. Saturated fat and high dose sugar input in the form of gourmet ice creams indulged in freakishly often have done little I suspect in keeping my immune system in tip-top shape.

There is no doubt the HIV meds are the main reason I am still here and I do take them religiously. The truth is though that they are slowly accelerating many of the health problems driven by the dietary-fueled metabolic derangement so endemic in American life today with diabetes, stroke, dementia and heart disease being several prominent ones.

One possible current saving grace when it comes to my many dietary indiscretions is that the grocer closest to me is Trader Joe’s and their absolutely crappy ice cream selection. Talk about a first world problem, hey?

The truth is really when looking at my long-term HIV/AIDS survival that it is clearly related to my privilege. I am a white guy in a part of the world where the problems I face are really first world ones. I have been the beneficiary of many forms of privilege that have allowed me to coast for much of the past 37 years with relatively easy access to cutting edge HIV treatments and medications. That white privilege does unfortunately still play a huge role in HIV disease even today in the United States as reflected by the disproportional rate of new HIV infections. African American gay and bisexual men face a one–in-two chance of being infected in their lifetime. The same risk for white gay men is one in eleven. 

https://www.nytimes.com/2017/06/06/magazine/americas-hidden-hiv-epidemic.html

The truth is I am skating on pretty thin ice needing to continue toxic but necessary HIV chemotherapies and having numerous metabolic derangements undoubtedly accelerating my inevitable demise. So what keeps me going? Well not to in any way be pandering this group has been one. I find great solace in participating in a group whose existence is facilitated by the same organization I became involved with in 1976. The truth is where would I be without you?

© April 2018

About the Author

I was born in La Porte, Indiana in 1949, raised on a farm and schooled by Holy Cross nuns. The bulk of my adult life, some 40 plus years, was spent in Denver, Colorado as a nurse, gardener and gay/AIDS activist. I have currently returned to Denver after an extended sabbatical in San Francisco, California.

Anxious Moments, by Gillian

This topic started badly. I found myself humming, endlessly, that old Perry Como hit – except I kept thinking his name was Perry Mason which did give me an anxious moment!

Anxious moments, moments we’ve been sharing ……. finally I realized, no! That was magic moments ….. but it hasn’t helped and that old tune is still going round and round in my head.

But back to anxious moments. Of course I’ve had them; plenty of them. You don’t get to my age without them do you? Even if you’re not one of the world’s natural-born worriers, which I am not. You still have anxious moments unless maybe if you’re some kind of psycho- or socio- path. Maybe they escape them. I don’t know. I don’t belong to that group either.

The thing is, I’ve already shared with this group many of my life’s anxious moments, so I will simply touch the surface of a few. And if you occasionally get a feeling of deja vu, no it’s nothing surreal, just me repeating myself – again!

Earliest memories of anxiety all revolve around my mother. Being responsible for her mother’s happiness is a burdensome thing for a little girl. I used to let her win at games, always anxious lest she should spot my subterfuge. I expressed boundless enthusiasm for the latest strange dish she cooked or peculiar garment she knitted, all of which resulted from many anxious moments for my mother. It wasn’t that my mother was just by nature incompetent, though there was a little of that, but simply that she had such limited resources due to wartime rationing. The World War Two philosophy of make do and mend was not a natural fit for her. Now of course, looking back, I am eternally grateful that these petty anxieties were the worst inflicted upon us at a time when so many had so very much more to worry about.

As rationing diminished after the war, new anxieties over my mother’s happiness arose. Things which she remembered from the pre-war days with such excitement, began to reappear.

She was so thrilled to be able to introduce them into my life. I tried hard not to disappoint. For some reason, pop (which my mother referred to quaintly as a ‘fizzy drink’) and ice cream returned, at least to our neck of the woods, at the same time. Mum and I stood in line forever, she barely able to contain her excitement at this new and wonderful experience about to come my way, and finally we got a little table in the crowded cafe. I peered doubtfully at a blob of some dubious white substance slowly melting in my little flowered bowl, and the even less salubrious reddish-brown liquid in my glass. Lots of bubbles swam to the top of the glass where they congealed to form a scummy-looking foam rather like that sometimes floating on a neighboring farmer’s pond; or the beer my dad occasionally drank. My mother was waiting, her face aglow with anticipation. I spooned a large helping of ice cream into my mouth and, feigning great enthusiasm, followed it immediately with a big gulp of Coke. Unaccustomed to ‘fizzy drinks’, the effervescence caught me by surprise. My little mouth let out a big gasp, and a mixture of ice cream and pop shot into my wind pipe whence shortly after it escaped down my nose to return, in ugly drips, to my little flowered bowl. I coughed loudly. I couldn’t get my breath. I was scared and I started to cry. The anticipation on Mum’s face turned to horror. Not, I understood even at that young age, for fear I might choke and die, which indeed was my fear at that moment, but because we were making a scene! Everyone in the cafe was looking. Those still lining up outside craned their necks to see and asked each other what was happening. My mother, absolutely mortified, picked me up and scuttled outside and away as fast as she could go. I coughed and hiccuped and sobbed my way home, devoured by guilt that I had so failed to bring her happiness.

Decades later, after my dad died, I had sleepless nights of anxiety over my mother trying to cope all alone in our old cold damp house with no heating except for the coal fire, and with few neighbors. It was with great relief that I finally persuaded her to move into assisted living in the local town, but even after her physical safety was pretty well covered, I still fretted anxiously over her psychological health. While she lived, I was never able to free myself of that responsibility I felt for her happiness, however illogical.

Other anxieties throughout my life have never reached anything like the strength of those concerning my mother. See, I can’t even stop writing about it. I said I would skim over my anxieties and immediately got all bogged down in those tales of my strange dynamic with Mum.

The rest I really can touch lightly upon.

A pang of anxiety on my first day of work at IBM. I’d be working on bombs, they said. Ever a pacifist, from centuries of Quaker heritage, I was horrified. Who knew IBM made bombs? It was with great relief that I saw it in writing as BOMs without the second b and learned that it meant Basic Operational Memory.

All the inevitable anxieties over raising children, in my case made in some ways less and others more by them being my step-children. Endless anxieties over the eldest. I loved the boy. I loved the man. But his teenage alcoholism sent him into a fast-forward path to a heartbreakingly early death at the age of fifty. I still grieve.

Anxieties over children never really go away even if, by now, they are not only parents but grandparents themselves. Should I have anxiety for my great-grandchildren in this insane world?

I cannot. I cannot picture what exactly my anxiety should encompass. For better or worse, their lives will be so very different from ours.

A touch of the anxieties we all feel as we age and future joys such as cancer, stroke, dementia and nursing homes rear up on the horizon, looming ever larger. But I find these are in truth minor anxieties. We’re all gonna’ go, sometime, someway!

In fact, as I age, I seem to have lost most of my middle-of-the-road kind of anxieties, which were mostly about others. The anxious moments which stay with me are either very small and completely self-centered, or over the Big Picture.

My tiny personal anxieties really do not loom large in my life. I don’t watch Betsy’s tennis matches because they give me occasional anxious moments; not because I care if she wins or loses but because I know she does. I get anxious in a way I never did in my younger days when i have to negotiate unfamiliar traffic patters. I’m always anxious not to be late so I arrive to almost everything half an our early.

If any anxieties keep me awake at night, which would be rare, they encompass the Big Picture. What can we really do about climate change? What can we really do about our President’s insane 4:00 a.m. tweets? How do we get our country back onto something like a sane path?

I find I can just let it all go. I play my small part. It’s all I can do. Anxious moments accomplish nothing. I hope to give them up completely.

© June 2017

About the Author

I was born and raised in England. After graduation from college there, I moved to the U.S. and, having discovered Colorado, never left. I have lived in the Denver-Boulder area since 1965, working for 30 years at IBM. I married, raised four stepchildren, then got divorced after finally, in my forties, accepting myself as a lesbian. I have been with my wonderful partner Betsy for thirty years. We have been married since 2013.

Elder Words, by Ricky

I believe that everyone would agree what the word “Words” means. I don’t guess that there is another meaning. But the word “Elder” has several possible meanings depending upon spelling and the context in which it is used. So, that being said, lets explore this topic of “Elder Words”.

In general, “elder” implies age, but in the Mormon church capital “E” Elder denotes a male 19 years of age or above who holds the Melchizedek Priesthood. So, their words could convey mundane meanings or specific religious messages as in, “I baptize you in the name of . . .,” etc. The title is used in other religions as well for similar or the same purpose.

So, perhaps it boils down to the degree of “age” in which the term “elder” is appropriate within different cultures. For example, in the book Harry Potter and the Deathly Hallows, the word is used to designate the most senior (as in most powerful) magic wand, the Elder Wand. The word “senior” is a synonym for “elder” which category would include: old, ancient, adult, and grownup. Another thing about this word is that it can also be used as a proper noun as a “stand alone” name or even part of a name; as in the John Wayne movie, “The Sons of Katy Elder” and “Elderberry” as in bushes and wine.

As we are not met this day to discuss the merits of movies or to relax with a glass of Elderberry wine or listen to sermons by Elder Berry, I will present for your enjoyment, boredom, or discomfort my take on the topic of Elder Words. Be forewarned, this topic is sometimes rather depressing so I will pause briefly so anyone can take an anti-depressant or you can tough it out without one. I guarantee there will be a happy ending, however sad the journey to get there.

As one moves through life from younger to not so younger and thereby gain a life time collection of experiences speaking with those persons who either preceded or are following down the path of destiny, we have the opportunity to reflect on, ponder, skim through, or try to remember those conversations and what they may have meant or done to us.

As a potential elder everyone has one or more embarrassing words moments that parents like to recall at family gatherings. Words like, “Mom, my urine is runny.” Embarrassing words may not become embarrassing words until after the fact, as in, “I don’t want to go get it because I might break it.”, then after 4-minutes a loud crash is heard in the school hallway.

And then there are words spoken by children before they become self-sufficient: “I want. . .”; “Can I have. . .”; “Will you buy this for me?”. Sadly, sometimes these words are re-spoken by those same children after they become senior citizens. At that time, the now elder is often told by his now grownup children: “You can’t watch TV until you eat all your dinner.”; “No, it’s too dangerous for someone your age.”; “It costs too much.”; “You don’t need that.”; “You can’t have ice cream. Have some yogurt instead.”; “It’s your bedtime.”; “I don’t have time to drive you everywhere you want to go.”; “I’m not made of money you know.”; “You want to have a party while we’re gone for the weekend! Do you think we’re crazy?” Those are the moments that make an elder think weird thoughts of the type, “Oh crap! My children have become me! Now I’m in real trouble.”

Sometimes parents deliberately create “embarrassing words” moments for their children, as in these words said over an external CB loud speaker while stopped at a large intersection in Salt Lake City; “Don’t touch me there Ricky, until we get home.”

Potential elders also get elder words of advice as they grow: “Don’t eat that from the floor.”; “Just say ‘NO’!”; “Do yourself a favor and . . .”; “You get what you pay for.”; “When you go to the chicken coop, just kick the rooster away like I do.”; “Please do me a favor, when you visit grand-elder, don’t be noisy or demanding because grand-elder tires easily.”; and the ever popular, “Don’t lie to me again.”

Then there are elder work-related words. Some of which we never wanted to hear: “You’re fired!”; “Get me your supervisor.”; “All you public servants are ass holes!”; “Touch your finger tips to your nose.”; “Assume the position.”; “You have the right to remain silent and I suggest you use it. You long-hair hippie freak.”

Of course there are also hateful elder words like: “I’ll make a man out of you.”; “It’s my way or the highway.”; “You’re no son of mine.”; and “I want no homos in my house. Get out and don’t come back!”

Now let us consider the words of the Eldest of all. His guidance to us is to “Honor thy father and thy mother: that thy days may be long upon the land which the Lord thy God giveth thee.” Over time this Elder’s advice is often quoted as, “Honor your father and mother” but the reason is seldom given. Now in our time it has been shortened again to the simple but less powerful, “respect your elders” or “respect your parents.” These smacks of a dictatorial demand of parents but again lacking any explanation as to why that should be done. It often boils down to those famous but unsatisfying elder words, “Because I told you so.”

Now as most parents and other observant elders know by either personal or sad experience, requests, demands, or procedures that don’t have logical, reasonable, or plausible explanations as to the “why” something is a procedure, request, or demand will cause different levels of irritation in children. Irritation leads to frustration. Frustration leads to resentment. Resentment leads to suppressed anger. Suppressed anger leads to a rebellious attitude. A rebellious attitude leads to a conflict of words (if you are lucky and violence if you are not). A conflict of words results in elder words like: “Are you stupid or something?”; “Don’t sass me.”; “Don’t talk back to me.”; “If you say that word again I’ll wash your mouth out with soap.”; (Mother to son, “Don’t talk to me like that. You just wait ’til you father comes home.”); (Father to son—after coming home, “Never talk to your mother like that again.”); (Father to son—double standard, “Don’t talk to me like that you little shit. Go get my belt!”)

There are elder words that are not generally spoken out loud but, nonetheless, pass through the consciousness of elder and younger minds. “Can I afford it?” “I can’t afford it, but I’m buying it anyway.” “Does he/she like/love me?” “How will I survive on only social security.” “Oh crap, I don’t remember his/her name.” “I think I’m losing my mind.” “Am I bi or gay?” Etc.

Taken as a whole, all these elder words paint a rather dismal portrait of the language of elders. I believe that over our life-time we elders have learned too many of the wrong words and not enough of the right words and how to use them.

In my experience, all grandparents have a special brand of English elder words for their grandchildren. I’ve even used this language myself recently and will again this week. I will now show you how I use it to communicate with my grandchild. “Schmooch, Schmooch, do you have a kiss for grandpa?” (With finger rubbing closed lips) “Blubb, blubb, blubb.” “Open wide. Yum, yum.” “Yea! (clap, clap, clap).” “Pppppst on the tummy.” “Psssst with tongue.” “Putt, putt, putt” with lips. “(blow a kiss).” “No, you can’t eat my cell phone.” And, “Don’t eat that from the floor.” That one seems to be universally contained within all cultures.

When the time comes I’ll add these elder words also: “Hi. Grandpa is here. I brought you a present.”; “Here is a cookie, but don’t let your mom see it or tell her I gave it to you.”; “Your bedtime is 9:00 but I’ll let you stay up until 10:00 as long as you don’t tell anyone.”; and “Let’s sneak out and go get ice cream.”

Elder words that are relatively rarely spoken: “Let me show you a better way to do this.”; “Wow. You did that really well.”; “Am I doing it right?”; “How can I do it better?”; “Let’s go play catch.”; “Why don’t you invite 2 or 3 friends and we’ll go to a movie.”; “Yes, I’m busy but I will always make time for you.”; “Do you want to talk about it?”; “Hey, I’ve got this extra $5 bill you can have with your allowance this week.”; “Where do you want to go on vacation this summer?”; “Yes dear. I’d love for your mother to come visit.”; “Yes, you can invite your friends over for a party. What do you want for snacks?”; “How do you feel about . . .?”; “You’re so smart.”; “You’re so bright, I’m gonna change your name to Sunny.”; “Can I help you with your chores?”; and, “No dear. Nothing you wear makes you look fat.”

The topic of elder words would not be complete without the words that are never ever said enough to anyone, “I love you.”

© 2015

About the Author

I was born in June of 1948 in Los Angeles, living first in Lawndale and then in Redondo Beach. Just prior to turning 8 years old in 1956, I began living with my grandparents on their farm in Isanti County, Minnesota for two years during which time my parents divorced.

When united with my mother and stepfather two years later in 1958, I lived first at Emerald Bay and then at South Lake Tahoe, California, graduating from South Tahoe High School in 1966. After three tours of duty with the Air Force, I moved to Denver, Colorado where I lived with my wife and four children until her passing away from complications of breast cancer four days after the 9-11 terrorist attack.

I came out as a gay man in the summer of 2010. I find writing these memories to be therapeutic.

My story blog is TheTahoeBoy.Blogspot.com