Hope, by Gillian

In my early days of working for IBM, on the bottom rung of the jobs ladder, I had a sign hanging by my workstation. It read,

I FEEL MUCH BETTER NOW THAT
I’VE COMPLETELY GIVEN UP HOPE.

I don’t know why I found this so amusing, but I did. Of course, as soon as I advanced to the next rung of the ladder I had to trash it, but I and my co-workers enjoyed it at the time – indeed it became quite a catch phrase for a while.

Perhaps it seemed funny at the time because I was, then, so far from giving up hope. I was full of hope and dreams. It was 1966; the midst of the swinging sixties with their promise of change and freedom. I was twenty-four and had a job which paid more than I had ever dreamed of making – eighty-four dollars a week. My future was awash with wonders! I was not to be disappointed. My life became awash with wonders, as it still is.

But the words from that silly little sign have never left my head. They pop up from time to time. There are certain circumstances when I find them to be true. Hope is not always your best friend; certainly not when it morphs into denial. On one visit to England to see my parents, I noticed a certain confusion of thinking in my dad. Oh well! I shrugged it off. He was, after all, in his seventies. It was only to be expected. (He was, of course, the age I am now – something else I would rather not think too much about.) Filled with false hope I returned to Colorado, only to be summoned back across the Pond after a few months, to deal with the reality of Dad’s dementia, which had worsened rapidly. My mother and I were both forced to abandon our hopes that he could remain at home and I set about learning my way through the bureaucracy of the British National Health Care System. I felt much better then, having abandoned all hope. Dad ended up in a facility for those with dementia in what was once the work-house in a local town. It was a very grim-looking building, but inside they had done everything possible to make it bright and cheerful, and the staff was wonderful. And it was free. I don’t think Alzheimer existed back then, and we didn’t have the knowledge of dementia which, sadly, we do now, but I knew enough to know there was no hope; that he would only get worse. The next, and last, time I saw him, he had no idea who I was. That was hard, but nothing like the shock it would have been had I been harboring false hopes.

One of my stepsons suddenly developed juvenile diabetes when he was eleven years old. Out of the blue, no more Xmas cookies, no birthday cake, no more of most of the food he loved. On top of that came the prospect of having to give himself an insulin injection every day of the rest of his life, and having constantly to measure and adjust his sugar levels. He cried. He raged. He threw things. He punched out at any of us who tried to hold him. Then suddenly, after a few crazy days, everything changed. He had given up hope and accepted his new reality. Of course he was not happy about it, but he had stopped fighting it. He is now retired from a lifetime at the post office, living happily in Nevada with his wife and large extended family. He told me once that the only time his diabetes really upset him was on a few occasions when he heard of the possibility of some big medical breakthrough, and felt a surge of new hope only to have it dashed. He had learned that hope was better avoided.

I have known people, and heard of many more, who, on receiving the terrible diagnosis of a terminal illness, were able to be at peace with it once they truly accepted that there was no hope. That is really living in the now, as our spiritual teachers would have us do. Hope is one of many things which prevent our doing that. We can never be fully in the present moment if we are forever dwelling in hopes and dreams of some future moment.

On the other hand, hopes and dreams of that better future can help those who see nothing to be grateful for in their ugly now. We recently watched a TV program, doubtless on PBS, about children growing up in poverty in this country. It was striking how many teenage boys found an incentive to stay in school, and more than that, to do well in their studies, because they hoped to get a football scholarship to college and go from there to professional football. It offered them at least a hope of a way out. What happens when they find they are not to belong to that tiny percentage of footballers, I don’t know. Has hope set them up for a mighty fall, or have they by virtue of that very hope, found some other way out?

What the Tangerine Tyrant did to his voters is nothing short of cruel. (See, I just cannot get through one story without him creeping into it!) He gave gullible people hope; but false hope.

By now most of theirs must be crashing down. Where are the re-opened mines and factories they were promised? Where is the nice clean swamp? And now, certainly, what has happened to that tax break? Oh, it suddenly became a tax increase. And they are about to lose their healthcare. No, he has taken away what hope they had and left them much worse than they were before.

You just have to get your mind off all this stuff, so thank goodness for football season! I don’t care that the Broncos are having the worst season in over fifty years. At least they know how to do it right. They are not only bad, they are spectacularly bad. Every week they fail to disappoint.

Yesterday they managed to have not one but two safeties scored against them. No team has done that since 1961. I mean, how good is that at being bad? Very clearly, they will not turn this season around.

I FEEL MUCH BETTER NOW THAT
I’VE COMPLETELY GIVEN UP HOPE.

© December 2017

About the Author

I was born and raised in England. After graduation from college there, I moved to the U.S. and, having discovered Colorado, never left. I have lived in the Denver-Boulder area since 1965, working for 30 years at IBM. I married, raised four stepchildren, then got divorced after finally, in my forties, accepting myself as a lesbian. I have been with my wonderful partner Betsy for thirty years. We have been married since 2013.

The Recliner, by Pat Gourley

Sometime round 1993 my partner who was then suffering significant side effects from advanced HIV disease and near incapacitating peripheral neuropathy purchased two blue recliners. We had them located in our basement right in front of the TV. They brought great comfort and the ability for a modicum of relaxation to him in his final years.

I therefore highly recommend recliners for the terminally ill. If, however, you are not looking imminent death in the face I absolutely do not recommend recliners. If you occasionally feel the need to recline there are sofas, beds or in a pinch even the floor for that and for god-sakes don’t add a nearby TV or computer screen to the mix.

One of my greatest personal fears with advancing age is the possibility of debilitating dementia. Being the vain, drama queen I am a loss of cognitive function leads my hit parade of bad things that could go wrong. Living alone and with that reality unlikely to change, the thought of winding up in a near vegetative state in a nursing home really lacks appeal. The reality of course is that HIV will probably do me in first. Or perhaps some nasty side-effect from the meds I take to keep “full-blown” AIDS at bay will be my cause of death long before I have the chance to develop dementia. HIV meds are a strong driver for metabolic syndrome and its possible ramifications like diabetes, heart disease or stroke. Living to a ripe old age does present us with an ever-increasing menu of options for returning to the stardust we all are.

But the at times all consuming drive to postpone the inevitable tends to occupy an inordinate number of my waking hours. I was therefore very interested in a recently published study out of Canada dealing with exercise as a viable intervention for postponing or possibly preventing the development of vascular dementia, Parkinson’s disease or Alzheimer’s disease. Lets face it in this era of Trump all things Canadian have particular appeal.

There is a known genetic mutation that increases the chances of getting dementia. This gene is called the apolipoprotein E (APOE). What this study strongly implied was that even if you didn’t have this APOE that might pre-dispose you to dementia by not exercising you blew the benefit of not having the bad gene. It is an important caveat though to know this study showed association only and not causation. In other words the study did not prove that lack of exercise causes dementia.

People with this APOE gene are believed to have three to four times the risk of developing dementia. However people without the gene who did not exercise had the same risk for dementia as those with it. The amount of exercise needed to decrease risk was modest – brisk walking three times a week.

Remember regular aerobic exercise seems to lower the risk of dementia, Parkinsons and Alzheimers – gene or no gene. The bottom line here is get your ass out of the recliner.

I have included a link to a review article for this study: http://www.cbsnews.com/news/lack-of-exercise-might-invite-dementia/

© February 2017

About the Author

I was born in La Porte, Indiana in 1949, raised on a farm and schooled by Holy Cross nuns. The bulk of my adult life, some 40 plus years, was spent in Denver, Colorado as a nurse, gardener and gay/AIDS activist. I have currently returned to Denver after an extended sabbatical in San Francisco, California.

Death Genes, by Gillian

Our very own favorite
quote-maker, Benjamin Franklin, held that death and taxes were the only
certainties ……. in …… well …… life. Sorry Ben, but that’s not quite
right. Many many people escape taxes by fair means and foul; legal and illegal.
I have never yet known, nor even heard of, anyone escaping death.
It comes, inevitably, to us
all.
When we are young it’s
something, though inevitable for sure, that happens to other people; the old,
the sick, the careless, the unfortunate. But not to us. Oh, sure, some day. But
not now.
As we age, that
inevitability looms larger. It no longer peeps over a distant horizon but leaps
up on the front porch, like some Halloween specter, yelling,
“Booooo!” It hides, ready to jump out at us, in our TV, mailbox, newspaper
and telephone. It lurks around every corner. With the death of every loved one,
friend, casual acquaintance, or even that celebrity who seems always to have
been there, it comes closer.
They say that the death of
your second parent is one of the most traumatic events in life: loss squared. I
have no argument with that. Suddenly bereft; orphaned. Oh yes, that must be
dreadful when you’re six. But it’s not a whole lot better when you’re
sixty-six. It hurts like hell. You are left with no-one who knew you that well
or for that long. It’s like someone cut off your leg, and you had to start all
over again learning how to walk. You have to start all over again learning how
to live, cut adrift in reality. That’s how it felt to me, anyway.
And then, suddenly, it
seems, it’s almost time for your turn.
And, after all, death
doesn’t seem so bad. Even if you have no religion, or perhaps because you do,
death remains a mystery; but not such a very scary one. Unless, perhaps, you
truly believe in Hell Fire and Damnation, in which case it must be just
terrifying. But for me, anyway, simply facing the Great Unknown is really no
scarier than getting on a plane headed for some place I’ve never been before
and have no idea what to expect.
A shrug. A nap.
“Oh, well. We’ll find
out when we get there.”
At this stage, I think, most
of us do not really fear death itself, but rather the manner of our dying. Please,
we scream inside our heads to a God we may or not believe in, don’t let me
get something like Lou Gehrig’s Disease, fully cognizant, feeling death come
piece by agonizing piece. On the other hand, please don’t let me have
alzheimer’s and lose that very cognizance.
In their eighties, my
parents became the worst possible combination. My father was physically fit as
a fiddle, but had dementia. My mother was smart as a tack but had, after a
broken hip, been confined to a wheelchair. They were rendered totally incapable
of looking out for each other, and ended up in separate wings of the same
nursing home.
But, in the end, I have damn
good death genes.
My dad died first;
peacefully, in his sleep, as the phrase goes, but in his case it was true, or
so they assured me. He had suffered little, physically, and somewhere in the
night his heart had simply stopped.
My mother, a couple of years
later, was awoken as she was every day, by an assistant serving her morning cup
of tea in bed. (Do I need to remind you that this is a Nursing Home in
England?)
When they returned to get
the cup, it was empty and Mum was dead. What a way to go!
She looked so at peace, the
undertaker told me. Of course, he was a lifelong friend, so he might have been
saying what I wanted to hear, but I choose not to think so.
My very best hope is that I
might emulate my mother’s death, though I have a longtime recovering-alcoholic
friend who says it’s more likely that in my case I will swig a pint and then
fall off my barstool.
Whatever!  As long as it’s swift and sudden.  And for that I have very good genes!
© 13 October 2014 
About
the Author 
 I
was born and raised in England. After graduation from college there, I moved to
the U.S. and, having discovered Colorado, never left. I have lived in the
Denver-Boulder area since 1965, working for 30 years at IBM. I married, raised
four stepchildren, then got divorced after finally, in my forties, accepting
myself as a lesbian. I have now been with my wonderful partner Betsy for 25
years.